Today, on World Hemophilia Day, let's raise awareness about this rare genetic disorder that affects roughly 1 in 10,000 people globally. Hemophilia disrupts the body's ability to produce clotting factors, essential proteins needed for proper blood clotting.
Living with a Bleeding Risk:
Dr. Madhav Danthala, a hematologist-oncologist, explains the significant challenges faced by hemophiliacs. A minor injury, harmless for most, can become a serious situation for someone with hemophilia. When an injury occurs, the blood lacks the necessary clotting factors, leading to prolonged bleeding compared to a healthy person.
The Dangers of Uncontrolled Bleeding:
This excessive bleeding can have severe consequences. External wounds can cause significant blood loss, but internal injuries pose a greater threat. Internal bleeding into joints, muscles, or organs can lead to serious damage or even death if left undetected or untreated.
Seeking Timely Medical Care:
Hemophiliacs require prompt medical attention for any injury, regardless of severity. Treatment often involves an infusion of clotting factor concentrates to replace the missing or deficient proteins in the bloodstream.
Balancing Activity and Safety:
Living with hemophilia requires a delicate balance. While an active lifestyle is encouraged, activities that heighten injury risk should be avoided. Regular exercise strengthens muscles and protects joints, but contact sports and high-risk activities are best avoided.
Hope for the Future:
Managing hemophilia involves regular check-ups, preventive treatment (prophylaxis), and immediate injury care. Thanks to advancements in medicine, hemophiliacs can lead fulfilling lives with proper care and adherence to treatment plans.
World Hemophilia Day is a reminder that with awareness and ongoing medical progress, we can empower those living with hemophilia to live healthy, active lives.
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